We celebrated Mikayla's 4th birthday on January 22, 2011. She has come so far this year, she has grown another 4 inches and is in the 8th percentile. This is truly a miracle and we couldn't be happier with her growth. Her medication has stayed the same for now .6ml daily injection. She is scheduled to have a new bone age done, and her typical round of blood work soon. I am curious to see what wer bone ages reads now.
Mikayla still has a long way to go, as she gets older her delays become more evident in some areas but in others she is so excited to learn.
Mikayla is excited to become a big sister soon we are expecting our 4th and final child Feb. 8 2011 (plans are to call her Maiah) she looks forward to taking care of her and not being the baby anymore.
I stumbled upon your blog and I just have to tell you, I read your story and mine is VERY similar! My 3rd child was born 6lbs13oz on January 15th, 2009. He was much smaller than my other two boys. He had stomach issues as an infant and then was "lactose intolerant" once he started regular milk. Starting at about 1 1/2 years old, doctors became concerned because he didn't grow for over a year. After a hospital stay w/ the IV test and being sedated for an MRI and bone scan, we finally found out he has pituitary dwarfism...he has growth hormone deficiency due to an ectopic pituitary gland - his pituitary is also stated to be smaller than normal. He has only been on the growth hormone shots (0.4, just increased to 0.6) for 3 months, but so far so good! We were surprised to learn that he is no longer lactose intolerant too! Thanks for your story, it's nice to know I'm not alone.
ReplyDelete-Molly
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