Recentlty it was brought to my attention through the Magic Foundation forum about a sho that recently aired on the Dr. Phil show. It was about what they called designer babies. The apparentyl started with a segment on Human Growth Hormone Therapy. The show was prwetty judgmental and had no medical professional there to give any factual advice. They basically made no indication that sometimes this therapy has to be give the GHD children for more reasons that just short statue and that we as parents are aware and scared to death about all the possible side affects that we don't know about but, also know that our children would not otherwise survive without it. The side effects of being Growth Hormone Def. is detrimental.
Dr. Phil should air another show apologizing.
Below is the letter for the Magic Foundation.
Dec 4, 2009 10:36 am (PST)
: D Dr. Phil:The recent segment of your show which dealt with "designer" children was horrifyingly negligent. The children who are taking HGH are prescribed such BY A DOCTOR. They have a medical condition in which their body does not produce enough of the hormone for their body to function. It is NOT all about linear growth, as your show tried to make it. If a child is diagnosed as diabetic, no one would THINK to refuse treatment. This is the same thing...the correct amount of growth hormone is MISSING in these children and all the injections do is REPLACE what is supposed to be there. Why was there no pediatric endocrinologist on your show who specializes in this treatment? I know why...because you would have gotten a response that didn't fit into your sensationistic aspirations for this topic. You don't WANT to show the truth, because that isn't what gets ratings. But you are being very unfair to those whose families are dealing with growthdisorders; and remember...some of them are (or were) your viewers too.---ear
Date: Thursday, December 3, 2009, 1:32 PMDear Families-Unfortunately the Dr. Phil show aired a segment about Designer Kids yesterday... .and guess what....he led with kids on GH! These kinds of shows are what fuel the problems our kids face! The bullying, the insurance prejudice etc....PLEASE read this email and help us BOMB his email ! Ask parents, friends, grandparents all to send comments. I have listed the links to his show and his email stuff below the 2 letters which Mary and I sent. Feel free to simply cut and paste our letters into the email form for his show and put your own "Ditto" at the top of the email to save time if you want. It doesn't matter that it is copied- he just needs to hear from everyone we can get! Please- this is important!The link to the show is here: http://community.drphil.com/boards/?EntryID=9590Scroll to the picture of the blond girl with the blue eyes on Dec. 2ndTo email comments- go here: http://drphil.com/plugger/respond/?plugID=9164
Sunday, December 6, 2009
SPECIAL EDUCATION OR NOT ???
Mikayla will be turning three and about to age out of Early Intervention Services. The question I asked myself was what now. Like many parents the cost of the therapy services your child needs and what insurance will actually pay for seems astronamical. I was told about a transition that was possibly available through a special education preschool within our school district.
Mikayla recently underwent a series of interviews and tests in order to qualify for this service.This is a long and very hard process for your child .My biggest concern was Mikayla' size . She is a danger to herself. She is unaware of the fact that she is the size of a 18-24 month old in a 3 -4 year old world. The tables and chairs are to high and potty training at school will be a challange . Yet I can not hold her back. The best option would be a special ed preschool.
Finally after two months of the child study team peeking in and out of our lives we had our IEP meeting. Mikayla was found eligible and it was found that she would benifit best in a self contained class room. This is a class with only seven mildly disabled children, one teacher and two aids not to mention the therapists that will come in and out of the class on a daily basis. Therapy is done with in the class enviroment they call this an inclusion program (all the children will benifet even if the tharapy given is not intentially directed for them. This class will best benifet Mikayla because it supplies the direct attention that she needs. Mikaylas attention span is also very small and typically jumps from thing to thing very quickly.
This is a bitter sweet victory. I am so happy that she continue to receive services however I was so hoping that when she was done will Early Intervention she would be reay to enter a main stream preschool.
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